UCB Pharma S.A., Belgium



Държава:Белгия
Кратка информация:Patient Support Programmes
As part of our commitment to patients and to further the understanding of severe diseases, UCB supports a number of programmes for patients and their families. These varied schemes include mentoring projects, sponsorship programmes, informative websites and scholarships, all of which work towards improving the quality of life for those affected by severe diseases.


Crohn's and Me™

Crohn's & Me is for people whose lives are affected by Crohn's disease - patients, friends, and family. It has helpful educational info and tips for living with Crohn's disease like information about diet, traveling ideas, videos from doctors and patients, and other resources. Members of the Crohn's & Me Community gain exclusive access to videos and a Crohn's Disease Tracker
Website Crohn's and Me
PatientsLikeMe

UCB and PatientsLikeMe, the leading online community for people with life-changing conditions, entered a strategic partnership in June 2009 to create an online, open epilepsy community that captures real-world experiences of people living with epilepsy in the U.S.
The platform was launched in January 2010 and designed to collect, analyse and reflect information received from people with epilepsy, regardless of their diagnosis, prognosis or treatment regimen. Participants record their real-time day-to-day progress in controlling their seizures and achieving their treatment goals, and share that with the community to help patients, caregivers, researchers and industry learn more about the disease.
Press release - June, 15, 2009
Live Beyond Epilepsy

This website has been created for people who want to find out more about epilepsy and hear from people who have learnt to live well with epilepsy.

It is full of useful, expert information about epilepsy along with hints and tips on how to better manage your epilepsy. Lots of the advice comes directly from people with epilepsy, people who want to share their stories with you and assure you you are not alone.
Website Live Beyond Epilepsy
Dutch program : Leef met Epilepsie
German program : Epilepsie gut behandeln
Epilepsy Advocate

Epilepsy Advocates are people living with epilepsy and caregivers who have refused to compromise and sought the best treatment for controlling their seizures with minimal side effects.

By sharing their personal success stories online and within local communities, Epilepsy Advocates strive to inspire people to interact with other people with epilepsy, learn from one another and make positive changes in each other's lives. It's their personal commitment to make a difference in their community and themselves.
Website Epilepsy Advocate
Canine Assistants

Seizure response dogs immediately change lives for their owners, but their extensive training can take up to 18 months.

That's why Canine Assistants work together with The Epilepsy Company™, UCB, Inc. in the training of every dog. Their partnership ensures that each dog gets the extensive training that it needs, and that more needs of the epilepsy community are met.
Read more about the canine assistants programme.
UCB Family Epilepsy Scholarship Program™

UCB, Inc. is committed to building the lives of US epilepsy patients and their family members/caregivers. This scholarship provides financial support for epilepsy patients or family members/caregivers who demonstrate academic and personal achievement.
H.O.P.E. Mentoring Program™

The H.O.P.E. Mentoring Program (Helping Other People with Epilepsy) was created to allow people who live with epilepsy to educate others and share their experiences. This educational program trains people with epilepsy to be "patient educators" throughout the epilepsy and neurology communities.

UCB, Inc. supports the H.O.P.E. Mentoring Program, which is available through the Epilepsy Foundation. For more information about the H.O.P.E. Program, please visit:
Website Epilepsy foundation
Parkinson's Voices

Parkinson’s Voices is a website that has been created for people who want to know more about Parkinson's disease, to share experiences with those who have the condition, and to find out how different members of their healthcare team can help them.
Website Parkinson's Voices
"Today I will..."

‘Today I will...’ invites people who live with Parkinson’s disease and those who care for them to share personal commitments and daily motivations by submitting short pledges of just 25 words or less, adding artwork or photographs if desired.

Pledges can describe anything that is motivating to a person living with Parkinson’s disease, a friend, family member or carer on a given day. Each month, the daily pledges will be compiled and turned into a visual word cloud, where more commonly entered words will appear larger than others, allowing ‘Today I will...’ to visually represent the collective inspirations of people living with Parkinson’s disease over time.
Visit "Today I will..." on the Parkinson's Voices website
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